运动神经元障碍

The Motor Neuron Disease/ALS Clinic is comprised of the following disciplines in order to help you and your family with the often multiple areas of need:

• 渐冻症协会代表—The Motor Neuron Disease/ALS Clinic is sponsored by the ALS Association. 一名渐冻症代表在诊所迎接病人, 讨论设备需求, 如有需要，大发娱乐提供借用设备, 并且可以进行家访.
• 基因顾问- - - - - -A genetic counselor is available to discuss the genetic aspects of your condition and obtain a multi-generation family history. 在适当的时候, 遗传咨询师会讨论这些好处, 风险, limitations of genetic testing for motor neuron diseases and the possible implications and importance of the information to you and your family members.
• 医务助理（文学硕士）—A medical assistant will check you into the clinic and obtain vitals and identify the areas of concerns that you wish to address during your visit. 他们将协助安排和跟进.
• 肌肉萎缩协会代表—The Motor Neuron Disease/ALS Clinic is sponsored by the Muscular Dystrophy Association (MDA). MDA代表在诊所迎接病人, 讨论设备需求 and 如有需要，大发娱乐提供借用设备.
• 神经学家—The role of the neurologist is to put together the suggestions from the clinic team and answer questions about all aspects of ALS.
• 职业治疗师（OT）- OT可以大发娱乐你的日常生活活动, 比如吃, 沙拉酱, 洗澡, 写作, 购物, 工作, 休闲活动. Compensatory strategies or adaptive devices may be recommended to help you maintain independence and improve quality of life.
• 药剂师,The pharmacist will review your medications to help optimize therapy and review possible side effects. The pharmacist can also help with medications for symptoms of ALS and answer any questions on medications for ALS.
• 物理治疗师（PT）- PT可以大发娱乐你的移动活动, 比如走路, 上下床，或者从椅子上站起来. 健身教练会建议你制定一个安全有效的锻炼计划. The PT recommends assistive devices to ensure safety in the home and community to decrease your fall risk.
• 胸腔科—A pulmonologist is available to address respiratory concerns and assist patients using a ventilator.
• 注册营养师（RD）—A RD is available to assist with ensuring you attain proper nutrition and makes sure you are educated on proper diet.
• 注册护士（注册护士）—A RN will aid in the coordination of patient care and will facilitate the appropriate intervention for the patient’s quality of life. The RN also stands as the “central person” and point of contact for concerns and questions between appointments in the ALS clinic and is able to contact others within the multidisciplinary team when necessary
• 研究协调员（RC）—The RC represents the doctors and will introduce recent ALS research and studies to you and family members. One study is designed to obtain DNA (one-time blood draw) and family pedigree (optional) from all patients and family members to be used for future research on ALS. The RC can also assist you with questions in regards with recent ALS research.
• 呼吸治疗师（RT）—The RT will obtain measurements of your respiratory function and will make recommendations on equipment for respiratory function.
• 社会工作者（西南）—A SW is available to address psychosocial concerns for you and your family. SW将解决有关高级指令的问题. SW is also available for counseling by phone or email outside of clinic hours.
• 语言病理学家（SLP）—The SLP is able to assist you primarily with eating safely and communicating with family and friends. SLP is able to help with strategies to eat safely and may perform swallow assessments to further guide this process. SLP is also able to make recommendations regarding communication systems to continue interactions with others. SLP还将评估认知和行为变化.
• 轮椅的助理—Assistants are available to help assess the patients’ needs for mobility equipment. 大发娱乐也会做任何可以在诊所做的修复. When a patient has a need for equipment, we go over the process and answer questions. We then facilitate the referral to the proper company that can do their insurance.